Publication: Prácticas artísticas desde la enfermedad crónica: el caso de Crepitantes como proyecto en torno a la fibrosis quística
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2023-03-01
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Universidad Complutense de Madrid
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Abstract
Prácticas artísticas desde la enfermedad crónica: el caso de Crepitantes como proyecto entorno a la fibrosis quística es una investigación interdisciplinar que trata de analizar cómo la generación de prácticas artísticas en torno a una enfermedad crónica puede poner en valor, visibilizar y concienciar sobre los relatos de colectivos minoritarios afectados por estas patologías, mejorar la experiencia del paciente respecto de la enfermedad que padece, y facilitarla creación de entornos comunitarios de aprendizaje desde los que compartir saberes y experiencias entre las personas vinculadas por una misma afectación. Esta tesis pretende plantear cuestiones, problemáticas e interrogantes que surgen alrededor del padecimiento en los diversos ámbitos que configuran la vida, así como identificar las posibilidades y modos de activación delas prácticas artísticas generadas a tenor de la enfermedad, analizando sus repercusiones a nivel social e institucional. La presente investigación se centra específicamente en el caso de la fibrosis quística: una patología crónica, degenerativa, denominada rara, que afecta principalmente a los sistemas respiratorio y digestivo y se caracteriza por una secreción más densa y abundante de mucosidad...
Artistic practices from chronic illness: the case of Crepitantes as a project around cystic fibrosis is an interdisciplinary research that seeks to analyze how the generation of artistic practices around a chronic disease can give value, make visible and raise awareness about the stories of minority groups affected by these pathologies, improve the patient's experience of the disease they suffer and facilitate the creation of community learning environments from which to share knowledge and experiences among people linked by the same affectation. This thesis aims to address issues, problems and questions that arise around the disease in the various areas that shape life, as well as to identify the possibilities and modes of activation of artistic practices generated by the disease, analyzing its repercussions both at social and institutional level. This research focuses specifically on the case of cystic fibrosis: a chronic, degenerative pathology, called rare, which primarily affects the respiratory and digestive systems and is characterized by a denser and abundant secretion of mucus...
Artistic practices from chronic illness: the case of Crepitantes as a project around cystic fibrosis is an interdisciplinary research that seeks to analyze how the generation of artistic practices around a chronic disease can give value, make visible and raise awareness about the stories of minority groups affected by these pathologies, improve the patient's experience of the disease they suffer and facilitate the creation of community learning environments from which to share knowledge and experiences among people linked by the same affectation. This thesis aims to address issues, problems and questions that arise around the disease in the various areas that shape life, as well as to identify the possibilities and modes of activation of artistic practices generated by the disease, analyzing its repercussions both at social and institutional level. This research focuses specifically on the case of cystic fibrosis: a chronic, degenerative pathology, called rare, which primarily affects the respiratory and digestive systems and is characterized by a denser and abundant secretion of mucus...
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Tesis inédita de la Universidad Complutense de Madrid, Facultad de Bellas Artes, leída el 15/12/2022